Date: 2013-05-20 06:15 pm (UTC)
I think you've got one idea rock solid right. You must make a change. You can't just let things sit the way they are.

What I'd want to do, if I was in your situation, is see if I could figure out what's going on. What muscle is not being used properly? What part of my engineering isn't working properly? And then, how can that be fixed by learning how to do things right?

If I had the energy and ability - which I typically don't, alas - I might call some universities, and see if there's anyone who might know who is doing interesting work in this area, and see if you can interview or consult with that person. There are some doctors who have very (very, very) good ideas about how to fix body issues with exercise and support, rather than surgery. Some of them may be quacks (or just might not be able to help you) but some of them might be spot-on right.

I'm not as afraid of intraspinal injections as I am about fusing vertebrae. I don't *like* the thought, but if someone said they were pretty sure they could fix my problems by doing a cortisone-or-whatever injection in a risky location, I'd say I'm cool with that, so long as a Very Experienced Doctor was overseeing the situation. But when they say "we want to make permanent changes to your bones" I'm much more cautious. (But keep in mind, my hip problems are now "just" annoying-as-hell, and mean I'll Never Be Batman - so you'd expect me to be skeptical of that. It sounds like your problems are much worse, and much more life affecting. So my answer isn't necessarily your answer.)

I think the one thing that sticks out, though, is that you should, definitely, do something. Even if you're feeling a bit better, well, you know how bad it *might* get, so now is a good time to do something. And if you don't feel better, well, you definitely need to do something.
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ladysprite

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